This blog was originally dedicated to update my friends and family on the details of my recovery from a traumatic spinal cord injury (SCI). I later began writing myself and now use this blog to document my journey through life with a spinal cord injury.

Wednesday, April 23, 2014

The Worth of a Depreciated Soul

As many of you know, the phrase "Defy The Odds" is a motto that I have chosen to help me through my journey with paralysis. It motivates me and gives me vision as to the opposition I face, as well as the courage I'll need to overcome that opposition. I suppose that in the beginning, I was thinking solely about defying the odds in physical recovery. However, as every day passes by, and as I learn more about myself and my physical injury, I realize that I've neglected to address an equally, if not more tragic wound received on the day of my accident. This wound is potentially more life-altering and more threatening to my well being than even my physical paralysis. It's one that deals with my deepest and most personal feelings of being and self-perception... The recovery I long for, and realize I am in most need of, is a recovery from feelings of depreciation and lessened worth as a human being. The odds that need most defying, are the high odds that I don't recover from this ordeal in an emotional way.



I realize that shortly after my injury, I began to perceive myself differently. There were countless circumstances and subsequent feelings that brought me to recognize the changes in the way I viewed myself As I looked in the mirror for the first time at the crippled and diminishing Carson sitting in a power chair, I was embarrassed of the person I saw in the mirror. I was sickened at the sight of myself, and fought the tears welling up in my eyes. During my first few outings into the community with occupational therapy, I saw that people looked at me differently than they did before, or completely avoided eye contact altogether. I realized that to some degree I was viewed as abnormal, and in my mind that meant less than normal, or less than human. Sub-human. 

Before, I used to take time to make sure I felt well groomed and presentable, but after my injury I found myself feeling like that was a waste of time, not because I thought it was unimportant, but because I thought it was a waste of time on someone like me. The thoughts, "It doesn't matter, I'm in a wheelchair anyway" filled my head. In essence, I began to feel like I had less value as a human being, and the respect I had for myself was quickly dwindling. I used to be happy to present myself to others and was pleased with the person others saw in me… And now I fight feelings of embarrassment when people I know see me rolling around in my wheelchair, or sitting reclined on a couch. Always sitting. These feelings are devastating to me, especially because it is so unlike me to feel such negative things about myself.

These feelings of depreciated self-worth began to make me believe that happiness was outside my reach. Like an ever-reoccurring nightmare, I constantly wonder if I will ever feel whole again in my lifetime. I wonder if I will ever feel like the true Carson again. While it is difficult to fathom the possibility, I hope with everything I have that happiness is still within my grasp, and that I can feel complete again, even as a quadriplegic. More than anything, I long to feel whole... But one thing is for sure. Happiness is not guaranteed just through my mobility. Without a doubt, all of us know individuals, perhaps even ourselves, who seem to have everything one could ask for, but are completely unhappy. In understanding this, I have recognized that I must have misunderstood happiness to some degree, and that there is something about it that I must learn. Happiness is not some emotion that waxes and wanes, or simply comes and goes with the luck of the day. It's something deeper.

I am reminded of a passage from Jesus the Christ, by James E Talmage, referring to happiness:

“Happiness is not akin with levity, nor is it one with light-minded mirth. It springs from the deeper fountains of the soul, and is not infrequently accompanied by tears. Have you never been so happy that you have had to weep? I have.”

So, my priorities have shifted slightly. My first quest must be to secure happiness in the now, and in my current circumstances. I do not need, nor should I wait to be happy once I'm walking. This requires a lot of emotional effort for me, since I so desperately yearn for that which I had before. Even the thought of never regaining that wholeness brings a surge of anguish and despair... But I reluctantly acknowledge that the time of adaptation has arrived. I feel intense hesitance and resentment at the prospect of accepting the now, but something inside, something from God, tells me it is the solution to finding peace... to find the happiness that is independent of any other external source, an invincible happiness that radiates from the deepest part of who I am.

Just like necessity is the mother of invention, negative and harmful feelings have always been the mother of the learning of new principles for me. These feelings motivated me to ask some questions. Since much of my unfulfillment and unhappiness comes from a feeling of lessened worth, I have been prompted to ask, What makes Carson valuable? Or for that matter, what makes any human being valuable? Was I more valuable before only because I could run and walk and jump? I doubt it. Was I more valuable because I was independent and self-reliant? Again, doubt it. I decided that that simply couldn't be the case.

There is more to me than my mobility.

Our world defines value in an inaccurate way. The world puts the highest prices on external beauty, physical attraction, popularity, talents, ability, education, money and power, just to name a few. If you have one or any of these in great abundance, you have a good amount of value according to our society. Now, I want to make it clear that I believe that many of these things are beneficial. It's good to take care of yourself, it's good to have an education, it's good to be successful and make money, as well as hone our skills and abilities, but what I'm saying is that this is not where true value lies. If value were to lie in any of those things, then ironically value would be cheap, value would be transient and dependent. I have found that a misunderstanding of where true value exists usually leads to unhappiness. 

I believe that value is independent of any external source or influence. It lies in the things that neither accident nor time or circumstance can never change. The only aspects of our person that can never change are things having to do with the character we have developed. There are things that, for better or for worse, are woven into the material of who we are. Regardless of where life takes us, we carry with us that fabric we have woven throughout our lives. There is peace for me in knowing that neither heaven nor hell can take from me what matters most. A businessman whose life is his career, can lose his business, and therefore his wealth. A world-class athlete may have a tragic accident that terminates his or her career. Movie stars and celebrities can fall victim to cancer or any other number of human illnesses. I guess the point I'm making to myself is that life will take it's toll on each of us, and at the end of the day the only thing that any of us can count on retaining is the character we have developed throughout our lives. Now that's stability. 

I would never undermine the value of the lives of people who have made important contributions to others and society, but I would argue that personal value lies in kindness and integrity, in compassion and sympathy, in service and generosity, and in true, unadulterated love, among other qualities. Love is the greatest of all virtues, and is the greatest defining characteristic of God. In our attempts to become like him or his Son, doing so without focusing on love is an attempt in vain. I think about the individuals that have influenced me most throughout my life. Without a doubt, I knew each of these people had love for me, and a love for all people in general. Couldn't most of us say the same? Love is the diamond of all valuable qualities.

 I suppose I have been forced to think about these lessons because of my accident. I have lost many of those things that the world puts a high price on. I've lost my physical stature, and most of the abilities I worked hard to obtain. I suppose that in the eyes of the world I might have lost the things that matter most, but I strive to reinforce the understanding that what truly matters most is yet within my reach, perhaps even more than ever before. 

Happiness won't bring my legs back... It won't give me what I had before... but thank God that there is more to life and worth, than what simply meets the eye.






Wednesday, April 9, 2014

Anything For A Friend

Friend's and family,

I am happy to officially present the organization, "Anything For A Friend"! While I was in the hospital still, some friends and family suggested that we apply for this magnificent fundraiser. I am happy to say that I was approved for the fundraiser, and couldn't be more grateful... Anything For A Friend has changed lives and communities because of  an amazing purpose geared towards uniting communities and individuals in love. The AFAF homepage says it best:

"Anything For A Friend is a simple concept about human beings and our interconnection. We believe that humans have an innate desire to connect and help each other when someone is in need. However, most are unsure as to how to provide such help. Anything For A Friend seeks to provide an avenue through which family, friends and the community of someone dealing with personal tragedy can band together to show support. We believe that through the organization of a community fundraiser, both the friends and the benefactor are able to minimize much of the fear and anxiety related to personal tragedy and find satisfaction through such an event, ultimately benefiting the entire community."

Becky Anderson is the founder of Anything For A Friend, and benefitted from the love and support of her own community and loved ones during her bout with cancer. Now, she generously shares the love and pays it forward through this organization.  My mom wrote a letter of thanks to Becky and the organization. It echoes my own gratitude and that of my family. I wanted to share it.

"Dear Becky,  

We feel incredibly blessed that Carson has been chosen to be a recipient of "Anything For A Friend". Having not heard of this organization before, I was in tears looking at the website for the first time. I know from what we have already experienced, that this is what Carson is going to need to help him get through. It was the outpouring of love and support from extended family, friends, neighbors and even strangers that got us through the initial traumatic stages of this ordeal. Now that Carson is home, we are facing the realities of this life-changing experience. The strain on our family has come in emotional, emotional, and financial levels that we could not have anticipated. We have wondered, "How can we do this?"  We can't... at least, not alone. I have learned through all of this, that the kind service we receive comes from the goodness of those who are instruments in God's hands, answering prayers we haven't even asked for! The mission of "Anything for a Friend" is incredible. I felt great hope as I read about communities coming together to serve those in need. What was even more remarkable to me was to see past recipients "pay it forward" to others in need, through their kind acts of service. It increased my awareness of the many different ways we can serve each other. It was a new picture I had not imagined. There are lessons to be learned and I am first in line to be taught. Thank you!"
-Camille


Every recipient of this fundraiser is asked to come up with a unique motto, so in the beginning stages of the organzing, the committee asked me to propose one that would symbolize my journey. This was a difficult task for me, but I finally came up with one. I chose the following motto and logo:


This motto and logo is so meaningful to me for many reasons. It is significant to me because the odds of recovery are not so highly in my favor. For anyone with a spinal cord injury, recovery is serious business, and takes years with little progress at times. I speak not only of physical recovery, but emotional and spiritual recovery as well. To me, it has always seemed like the road to recovery was a daunting one, with the odds of recovery seeming overwhelmingly small. The person who designed this logo explained why she chose to present the motto this way. She depicted the word "odds" as being smaller then the word "defy", for symbolic reasons. It is symbolic in that the odds of our success over certain challenges are small at times (especially in my case), but our ability to overcome them can be greater.  The word "defy" seems to overshadow and even crush the odds. Through miracles, hard work, prayers of family and friends, and the support of an incredible community, I hope to defy the odds in every positive way. I plan to maximize my recovery in every aspect and live a full life of happiness. I still do not know how that will happen, and at times I doubt I can do it. I am very far from achieving this goal still, but I know that it must be possible. I have to do it...

One thing that I have learned about a spinal cord injury and other great difficulties, is that the ripple effect is enormous. In fact, I wouldn't call them ripples, I would call them tidal waves, washing over the family and, at times, even the community of the loved one, affecting all who exist in his or her surroundings. This has been a difficult but necessary lesson for me to learn. If I could suffer alone, I would. If I could be the only one to suffer emotionally, physically, spiritually or otherwise, that would be my choice. Watching my family and especially my parents suffer with me has been overwhelming, and an aspect of my injury that has been as hard to bear as any. It destroys me to see their strugglings and know that they are born from my injury. I I don't want them to hurt like I do...but no matter how I wish this wouldn't affect others, it does, and I simply cannot do this by myself. No matter my willpower, no matter my strivings for independence, I have to rely on the constant support and help of others. Before, there were very few things that I felt I could not do. I was able and capable in every way, and felt that I could overcome and find solutions to my challenges by myself. Now, I humbly implore the help of all who surround me.

So, I humbly and happily invite all of you to this magnificent community event, Anything For A Friend. Hope to see you there. 

Here's the info: Mark your calendars! As you can see, some events you can preregister for, which I suggest doing.

Date: May 31, 2014 (10:00 AM - 2:00 PM)

Location: Layton Commons Park Bowery
                  403 N. Wasatch Dr.
                  Layton, UT 84041

Activities
I am indebted forever to all of you who have already helped, supported, and loved me... I could never repay you for what you've already done for me and my family. Thank you for helping me defy the odds of my injury.

My sincerest love and gratitude,

Carson T.






Monday, April 7, 2014

Some Bad News... And A Bit Of Good News

A spinal cord injury is a gift that keeps on giving, and on Saturday night I received yet another one of it's gifts. Throughout the day, I usually find that my legs have a lot of swelling. This is because I am sitting down for most of the day, and am unable to move and contract my muscles. However, when I go to sleep and wake up the next morning, the swelling has usually disappeared. For a few days I realized that my left foot was still swollen in the morning, but I didn't think much of it until Saturday. I noticed that the swelling had worsened and that it had continued up into my calf. I had been told in the hospital that people with a SCI (spinal cord injury) are at much higher risk for blood clots, so we suspected such was the case. We went into the emergency room that night where it was confirmed that I have a DVT (blood clot) in my left calf. I know, great. DVTs can be extremely dangerous if they are not found early on. If left unchecked, the clot can be dislodged and move to the lungs where it can be fatal.

(in the hospital with my celebrating-my-DVT face)

So what does this mean? It means that I will have to be on Coumadin, a blood thinner, for the next six months. I will also be on Lovenox shots twice a day until my INR is stabilized. To be honest, I'm still not exactly sure what that all means, but that's what they tell me. I will also need to go into the doctor frequently for blood draws. I found out today as well that I won't be able to continue physical therapy in the same rigorous way until I am off Lovenox! So, I will be finding other little ways to improve while I wait for everything to stabilize.

To be honest, this was all very discouraging to me. I keep thinking, if I could only deal with paralysis alone, this would be so much easier. If I only had to worry about the fact that I couldn't walk anymore, I would do so much better. It's all of the secondary problems of an SCI that keep me down. The blood pressure, the nerve pain, the catheterizations and bowel care, and now the DVT (though, I am sure this is not the end). I look forward to the day when some of this hopefully regulates itself. It's no guarantee that any of it will get better, but we can always hope, right? This is still just the beginning. 

Now for the better news...

One thing that did go well was that I started swimming a little bit again during therapy! Since my injury, I had been very curious as to how I would do in the water, and how much swimming would be affected because of my injury. I obviously knew that I had no core and knew that that alone would greatly affect my ability to swim, but I got in the water and tried it out. I was slightly apprehensive that swimming would end up being unfulfilling since I had enjoyed competitive swimming for a very long time before my accident.

Jan (my physical therapist) warned me that swimming is usually extremely frustrating for quadriplegics because of the reasons  previously mentioned. No core. In fact, she said she has had no one use stroke swimming as therapy. I first started with backstroke (because it requires less core strength) and realized that this would be tricky. I initially realized that because my hands are still so weak, I don't have the strength to cup them to pull the water in a way that allows me good form as I swim. Afterward, I tried swimming butterfly and came to the same conclusion. So, we found a pair of gloves for swimming and it made a huge difference. 

To make a long story short, I realized that swimming still felt like swimming to me, which was the greatest relief. I actually felt like I had retained something from my injury. It's obviously not the same, I mean, I still currently have to wear a device that floats me slightly, but it was a happy discovery. I swim in a pool that creates a current that I can swim into so I can stay stationary.

Now I have to make a few disclaimers to make. It has been three months since I have done any kind of cardiovascular activity, not to mention that for the first few weeks of my injury, I couldn't even lift my arms up. I am still working on building strength and all the muscle I lost in the hospital. You will see that my form quickly deteriorates throughout the exercise! Don't judge. :)


This is just a quick clip of me working on some butterfly when I finally got my hand gloves on.


This is a clip of a 2 minute exercise that Jan had me do. I am alternating between backstroke for 20 seconds and butterfly for 10 seconds (video says breaststroke on accident). This was a super hard workout for me and I kinda wanted to puke after. No kidding.


I heard that some of you are unable to view the videos on the blog, so if you can't, go ahead and click on the link the below that will take you to youtube. The quality is better anyway!

The two-minute swim

Butterfly

Thursday, April 3, 2014

From hospital to home

Friends,

I apologize! It has been like three weeks since I last put up a post. Just believe me when I say this has been the hardest time of my life… but I promise to do better in putting up updates for those of you who are following. :)

Just a few days ago, I completed 3 complete weeks since I came home from the hospital! March 30th recently passed as well, marking three months since my injury. There is a lot to give an update on, but before I move into my time home, there are many thanks to be given. I wish to backtrack into some of the months that I stayed in the hospital. It is impossible to thank everyone for their unique contributions. Many have prayed, visited, and generously spent time with me in the hospital. Countless others wrote me letters, sent flowers, selflessly raised funds for my recovery, and recently, even held a basketball tournament on my behalf. To all who have in any way helped, prayed, or visited me… thank you. I have been reluctant to mention any particular group or individual because there were so many who helped in significant ways. I just want to highlight a few people or groups who helped in an especially unique manner.

The first thanks goes to my rehab team. These are the angels that taught me how to use my newly injured body again. There were very few times when I was able to convey to a therapist or doctor my gratitude for what they were doing for me. I doubt that any of the people in this picture had any idea of what they mean to me. There were also countless more in the hospital who became dear friends, including the staff and nurses in particular. In a very real sense, these people saved a part of my life, and allowed me a certain degree of mobility that I otherwise would not have. Thank you, Team Rehab, for everything you did for me. I love you dearly.



On Sunday, February 23, friend and fellow flutist, Gabriel Gutierrez, organized a benefit concert in El Paso, Texas. The concert was beautiful, high-quality, and contained some of my very favorite pieces that Gabriel played himself. I was lucky enough to see it all on Facetime in my very own hospital room. I want to thank Gabriel personally as well as all those who, without ever having met me, attended the concert. I can't say I didn't shed a few tears at witnessing such generosity. This is a picture of Eric Hanson singing a beautiful rendition of "Bring Him Home" from Les Miserables.



Next thanks goes to Adams Elementary, a local elementary school, and the one several of my family members attended. Many of you know I am very single, but that didn't keep me from receiving a lot of very special love in a very special way on Valentine's Day. I received well over 300 individual valentines from the students at Adams Elementary! I enjoyed going through the valentines, trying to decipher the uniquely spelled words of children learning to read and write. What more could I have asked for on Valentine's Day than the love of hundreds of little children? Nothin. :) Thanks Adams Elementary!



Shortly before I left the hospital I had surprise visitors Jon Schmidt and his wife, Michelle. Hospitals can get pretty quiet at 9 o'clock at night,  but I can tell you that the rehab floor wasn't so silent on this one! John was generous enough to play me and my visitors a little concert on a donated upright piano in the lounge. It had been a while since I had heard live music, which made this experience all the more meaningful. I laughed and cried on more than one occasion during his playing. They were very generous and kind to visit me, seeing as I am a complete stranger. This was the first time that I had met the Schmidt family, but I hope it won't be the last.


I had the great honor of having Elder L. Tom Perry come and visit me in the hospital. I am not exactly sure how he became aware of my injury and recovery, but I am guessing that it was either from my blog or the fact that he was at my home stake conference shortly following my accident. If you have kept up on any of my other blog posts, it's no news to you that I felt the great need for spiritual guidance and comfort. There was a time specifically that I prayed for strength beyond my own and for direction and vision as to my life, seeing that things had been so dramatically altered. Elder Perry came at just the right moment, and his blessing gave me reason to hope for a brighter future in terms of both recovery, and purpose in life. I am grateful for the personal visit he and his wife made to me, and for the time they took to minister to one individual in need.


I don't even know where to start here... there are few times that I feel in adequate in being able to express my love or feelings, but I don't know if words could ever be enough to describe what I feel for my parents. Thanking my parents for what they have done for me could require a whole blog post of its own, and I'm sure at some point that will be the case. I am confident in saying that I have no idea what my parents have been through in trying to keep me well and alive. When they were not at the hospital, they were working tirelessly at home to renovate and prepare the house for when I returned. When I look at this picture, I easily cry. I have incredibly strong relationships with both of my parents. I have known without a doubt my whole life that they love me and would sacrifice anything for the benefit of me or my siblings. However, I have never witnessed love like I have witnessed from my parents in the last three months. They have set aside everything to come to my aid. "Greater love hath no man than this, that a man lay down his life for his friends." (John 15:13) I have seen the greatest expression of love as my parents have laid down their own personal interests for me, and know that they would do this for any member of my family. I have watched them walk with me through every step of this nightmarish journey. I have always counted my family and especially my parents as my greatest blessing. I hope they know how much they mean to me, and I will strive to prove my love to them like they have proved it to me. I would not be who I am today if it were not for the examples and love of my parents.



As I said earlier, there are so many thanks to be given from my time in the hospital, it is difficult to only mention a few. I don't know where I acquired such wonderful friends and family, but like I have said before, you have been the ones who have saved me. Thank you to all of you who have chosen to walk my journey with me. God bless you!