I have a confession to make to you. There are many subjects I have
wanted to write about, but have hesitated to do so for fear of being a
hypocrite. That is, speaking or writing of a principle that I want to acquire
but have not yet attained. Sometimes I feel like this blog should be called,
"Things Carson Truly Wants to Internalize, But Hasn't (Yet) Been Able
To." I keep making disclaimers throughout my blogs and I hope this is the
last one. I'm quite sure almost anyone who is trying to improve in almost
any aspect of his or her humanity would feel this to some degree. Isn't it the
plight of every Christian, or every good man or woman for that matter, to
become or internalize what he or she believes? It's a quest that takes more
than a lifetime. This post is about one of those subjects.
That subject is patience. However, I've found patience
is exercised in conjunction with other principles like faith or hope.
For example, the very definition of faith implies that one has yet to arrive at
some sort of destination. The journey leading up to that destination always
requires patience and hope. Patience in the waiting for something not yet
realized, and the hope that one day it will be. They are by nature
interconnected, I think. So, I guess it's more than just about patience!
Over the last few weeks, I have been feeling like my efforts towards recovery have been in vain. These feelings are greatly motivated by my dissatisfaction with how function has returned below my injury level. I am grateful for what has and continues to return, but it's at a rate that I find... depressing. While feeling somewhat hopeless about the future, I've had some experiences that have given me new insight and perspective, and have caused me to reconsider my attitude towards the current circumstance.
Some of you may already know that my physical therapy can essentially be broken
down in two parts; the working of muscles above injury level, and the working
of muscles below injury level. Working out areas below injury level means
working muscles that work very little, if at all. This is terribly frustrating
work for me. I've described my efforts at physical therapy to some by way of an
example. I invite you (whoever's reading this) to try something. I
want you to take a moment to find an object that's close to you. It can be any
size, but something relatively small would probably be good. Now that you have
found the item, your objective is to move the object using only your mind. You
can do anything you'd like to move it, just as long as you're only using your
mind to do it. Stare at it. Try your very hardest! You can move it, you can do
it!... Now, repeat this exercise for a few hours, for 4-5 days a week. For some
this works faster than it does for others, and for some it doesn't end up
working at all, but keep at it.
I've spent the last eight months doing this exercise and I know
many who have been at it ten times longer than I have. What I have described
above is how it can feel day after day, trying to exercise certain parts of my
body. I go to therapy and try to accomplish an exercise over and over again,
but to no apparent avail. It tries my utmost patience. There are many days
where I feel I am wasting my time as much as you would be, trying to move that
object with your mind. It was probably only a week or two ago that I
was feeling especially frustrated and hopeless during therapy. I turned to my
PT and said, "Jan, I'm afraid I'm plateauing..." She looked at me and
said something to the effect of, "Sir, you are way too early in your
injury to be worried about plateauing." So, I was given the "plateau
talk", which was helpful and got back to work. Shortly after that, I had
the following experience that taught an me an important lesson.
Me before the "plateau talk" |
I was at physical therapy like any other day of the week, and my therapist
decided that I would do some standing in a walker. I sit on the bench and have
a therapist sitting in front of me with his knees on mine, blocking them so
that they don't just shoot out from under me when he pulls me up. I have a
walker between us that I can grab onto, and the therapist has a belt around my
hips to pull me up when it's time. I lean forward as he pulls me up, and I get
into a standing position. Once I'm standing, I do a number of different
exercise to challenge the muscles responsible for keeping me upright. I have to
find the "sweet spot" where I feel like I'm falling but have just
enough control to keep myself from going down.
I have stood many times in the walker, and always try to stay
upright as long as possible. That is, after all, the point of the exercise. As
I was standing there working to execute my task effectively, another therapist
came behind me to feel which muscles were firing (contracting) within my
abdominals and low back. As she tried to feel for them, I would try to flex and
contract everything, but the therapist monitoring me remained silent, feeling
no change in the muscles. As I continued to do my best to find my balance, I
would often lose control and have to catch myself in frustration, needing to
put my hands back down on the walker. However, right at the moment I failed to
stay upright, the therapist behind me would say, "Hey, good muscle
contraction!"
Surprised and frustrated, I tried again. I tried to find the sweet
spot, but it wasn't until I had failed at my attempt that my muscles would give
that last bit of effort required for contraction, that the therapist would feel
something fire. In essence, I was succeeding only when I experienced what I
thought was a dismal attempt at standing upright. I began to think about the
possibility of this being the case in every aspect of my recover. Could it be
that more is happening below the surface that I am aware of?
This learning experience has motivated me to keep working hard even when no progress seems to be made and I have tried to change my
perception of success during therapy. Recognize my use of the verb
"try" in the sentence above. I still get frustrated and still want to
throw in the towel sometimes, but during these hopeless times I have to
remind myself that at least some progress is occasionally masked as failure, as
experienced in the walker. In short, all this walker business inspired me to
reflect on the virtue of patience. The experience said, "Keep working hard
because something unseen is occurring, be patient, and don't call the game
early".
I have remembered one of my favorite quotes by Neal A. Maxwell. He
said, “Patience is... clearly not
fatalistic, shoulder-shrugging resignation. It is the acceptance of a divine
rhythm to life; it is obedience prolonged. Patience stoutly resists pulling up
the daisies to see how the roots are doing. ” In other words, patience does not
suggest that you pull out the white flag to give up the fight, nor does it
suggest that we should become apathetic to our plight. It does suggest
that we learn to accept the timetable that has been given to us, regardless of
the context of our life struggle. I've struggled to find the line between
acceptance and resignation, wanting to accept what has happened, but wanting to
never give up on the hope for change. I believe that patience is part of that
answer.
Waiting is tough, but patience is especially tried when the future
is not clear. My SCI has gone above and beyond in
testing my patience, since the outcome of my injury is unknown. I don't have the
blessing of knowing that I'll achieve my desired outcome.
It's not like what I've experienced before in life. In anything else like sports,
music, or academics, I know that I'll have to practice, sacrifice, and suffer
to get better. I know that I'll have to focus and push my limits to improve,
but I have at least been fairly certain that I would be rewarded with
improvement. However, this is not so for my SCI recovery, nor is it so for many
people in other circumstances. Sometimes we don't know what the outcome of our
efforts will be, so we simply try to hope for the best as we do what we can.
This has been the true test for me since I have found it difficult to find a
basis for hoping at all. I hear myself ask, "What can I hope for in this?
I don't even know if what I seek is within reach..." This hoping without evidence
reminds me of Abraham in the scriptures, who "against hope, believed in
hope..." as he patiently awaited the fulfillment of God's promises. If you
know how his story ends, you know that his hope was not in vain, but that the
fulfillment of those promises required time.
Like in Abraham's case, certain final outcomes do
not rise to the surface until later, and like seeds, some things grow down before
they grow up... Which is exactly the reason I want to keep at it! Working with
faith and patience is a risk for me since I can't promise myself certain
results, but I consider giving up an even greater risk. What if the seeds we've
planted are about to burst into life? What if the plant we've cultivated has
healthy roots, and is on the brink of shooting up above the surface into the
daylight, revealing the fruit of all our hard work?
The last 8 months have been hellish for me, and I cannot describe
the angst I feel over my whole recovery. I dream about walking over and over again,
feeling the freedom I had before. I dream that I'm better, weak but better, and
that everything has somehow miraculously worked out. I dream that life is the
way it was again... and then I wake up. I wake up paralyzed in bed, probably
aching and sore from therapy, and struggle to get out of bed to start another day. It's depressing and painful to realize that from this there
is no escape. What's happened has happened, and there's nothing I can do go
back to December 30th to stop myself from jumping, or at least tell the management
at the park to replace the flat, deteriorated foam. And no matter what I do,
this will be my life experience... so it all comes back to choice. I have to
wait, so how will I choose to wait? Will I choose to learn patience and gain
something from this in spite of what has transpired, or will I choose to rot?
Will I choose to hope for positive change to occur at some point, or will I
resign myself to a ruined life?
I say it all the time, "I want to be happy again". I
know I can't be happy if I give up, and I have chosen to try and learn with the
hope that I will be content with life one day. In the back of my mind I think,
maybe, just maybe those dreams I have every night could come true. Maybe one
day the Carson of real life will become the Carson of my dreams... but in the
meantime, I have to learn patience, which for me means a lot of suffering. My
hope is that while I grow the daisies of my life, I can learn this patience.
I imagine that the truly patient have learned to
enjoy the warm sunlight while watering their flowers, or take time to notice
the sweet scent of the soil they work in. The truly patient do not say,
"I'll be happy when...", though they still long to see the hard green
bud they tend erupt into soft white petals. These have learned to live now,
though it's difficult. Their positive outlook does not diminish their suffering
per se, but perhaps it does allow them to avoid a few more thunderstorms than
the rest of us.
I am not one of the patient, but I want to
be. I personally have flowerbeds full of upturned daisies as a result of
my desperation to know that something is growing. The skies over my gardens are
overcast more than they are sunny, by some choice, and it's generally colder
than it is warm. I am learning that I have less control over how the seed
grows, but have more control over environment it grows in. It's my goal to
learn to let the flowers grow on their own time, and choose the sunnier days
over the darker ones. It's my goal to learn to live now and not
"when", and it's my goal to generally enjoy the surroundings of my
garden as I watch for the transformation from bud into blossom.
Another stellar entry by THE Carson tueller. Please publish these in a book someday, especially for those who have this feelings but are afraid to share them. Love you, and miss you
ReplyDeleteCarson, patience is a hard virtue in trials. I developed a severely disabling mental illness, which has painstakingly improved over years and years of patience. But that didn't come without much fear, doubt, tears, depression, and even thoughts of suicide. I've been through hell for the past 7 years trying to figure out how to be balanced with bipolar. It requires SO much effort that it is exhausting, and literally has felt many, many times like I'm trying to move something with my mind- that is, my emotions. I have been trapped inside the prison of my mind to the point where my functionality goes beneath where it was before my diagnosis and development of bipolar. I never used to have trouble getting out of bed and being productive. Now, some days I must accept that my best varies from day to day. It's like tithing. We have a certain amount to give, and whatever amount that is, God and all the hosts of heaven laud you for it. And the offering is still accepted with joy on high. Journeying can be joyful, provided I count my blessings and am gentle on myself. If I struggle to "pay my tithing" in a day, I think of it as a child learning to walk. You are learning to walk physically, but emotionally, spiritually, and mentally in ways otherwise impossible to learn for you. It is glorious to watch you grow and fight, defying the odds as I have for 7 years with mental illness. Be strong through Christ, "for with God, nothing shall be impossible." (Luke 1:37). I love you, Carson.
ReplyDeleteLove your posts Carson. You are an inspired writer, among your many talents. You really do have a way with words. Hugs to you!
ReplyDeleteI do not know you but thank you for your words. I lost my husband in a plane crash and then my 17 year old son to suicide and I love what you have said..... Thank you... You are an amazing young man
ReplyDeleteGod bless you
God is using your honesty in writing this blog to encourage and stregthen many in their various life 'traumas'. Thank you! (I am an Ames friend of Janine. Our daughters graduated from AHS.
ReplyDeleteHello Carson. I've been following your story from the beginning. Thank you for this and for all your inspired, thoughtful, searingly honest posts. I rejoiced at your Stairmaster post!
ReplyDeleteI've spent most of my life around talented people like you (hotsomuch me - I'm the Jill of All Trades, Mistress of None - and it took 40 of my 53 years to be okay with that), and can relate to your particular flavor of patience trial as described here.
What I can tell you is that in 12 step recovery programs (AA, OA, the Church's Addiction Recovery programs, etc.) they have many sayings, and one of my favorites is one that directly relates here.
"Don't leave five minutes before the miracle happens."
Now, just as the People of Alma didn't know how long they would be in bondage, it was because of their faith and their patience that the Lord was able to make their burdens light. And "on the morrow" He released them from bondage. So too, with this saying, everyone's "five minutes" is of varying length. Only the Lord knows how long Carson's five minutes is. But He WILL bless you, and because of your efforts to move the unmovable with your mind (so to speak) over and over again, I know that He will hasten the five minutes to a shorter period. He WILL bless you because of your efforts. He knows you and he knows the desire of your heart.
I and my family will continue to pray for your progress and for peace in your heart as you trudge this road to happy destiny (another 12 step saying). God bless you.
I thank each of you for your sincere comments. While I don't usually respond to them (out of habit), I certainly treasure them. I would hope that this would be an appropriate place for sharing thoughts and experiences. I am honest and genuine even when it's ugly because I believe that such is reality. What's the value of writing about a lot of fictitious feelings? Nothing, no value in that. God bless you in your own lives.
ReplyDeleteCarson, You inspire me! Another person that was paralyzed that inspired me was Jack Rushton... See his youtube video: https://www.youtube.com/watch?v=U3HnUfqCBfc Also Art Berg (also paralyzed) inspired others and became an author, father and professional and motivational speaker for IBM, At&T etc. http://artberg.com/
ReplyDeleteOne of the tests to life to find our own dark spots of our natural man or spirit and overcome them. These tough circumstances find our feelings of discouragement, despair, fear, self-pity etc, and make truly battle with them. Not easy!! In the process we learn more about ourselves and inspire others. That is what you are doing! Even in the movie, Pollyanna she took negative things and turned in them into positive perspectives. However when she fell, she too became extremely discouraged, depressed and the whole town rallied around her. It should like you have that same friendship support that is rallying around you. Keep being strong and inspiring others, and you will be successful, because the real battle is not your physical abilities, but your spiritual abilities to overcome these fears, discouragement etc. In the end the greatest blessing is to be a blessing to others. Your trial has put your body in position of weakness, but it has put your spirit in position of strength to inspire others as well as yourself.
Your blog is incredible. Thank you for sharing your heart and soul in these posts. I don't know you, but I know your aunt, Janene Mickelson, is a good friend of my family. She posted your flute video, and I was so touched by it. As a harpist who as had surgery on both of her hands, I can understand the heartache and the fear of losing what you had. But your words and faith are very inspiring. I'm so sorry that this has happened to you, but it is amazing what you are doing with it. C.S. Lewis writes "Hardships often prepare ordinary people for extraordinary destiny." I have no doubt the Lord is preparing you to do incredible things.
ReplyDeleteAs I read this blog a quote from Elder Uchtdorf came to mind "If you define hypocrite as someone who fails to live up perfectly to what he or she believes, then we are all hypocrites. None of us is quite as Christlike as we know we should be. But we earnestly desire to overcome our faults and the tendency to sin. With our heart and soul we yearn to become better with the help of the Atonement of Jesus Christ."
I am grateful to have read your posts and been touched by your example as I fight my own gardens "of upturned daisies" (great analogy-really).
In reading your comments, I see someone mentioned Jack Rushton. He really is inspiring. I knew him personally, and he was an incredible man. I even got to be with him as he gave one of the many patriarchal blessings he performed as a quadriplegic. His book "It's good to be alive" is a great one. I highly recommend it. It helped me through my journey too.
All the Best.
I ask the Heavenly Father give to you the strenght and hope He gave to Abraham. And JesusChrist showed the love of this same Father for every one of His sons. My prayers fot you.
ReplyDelete