I woke up squinting just as the sun was beginning to stream through my bedroom window. Still exhausted from a restless night of sleep, I rolled over and looked at my phone to realize that I had slept in later than I meant to. I sat up slowly and waited a moment to let my blood pressure rise before pulling my legs off of the bed, one at a time. After pausing another few seconds, I transferred into my wheelchair and headed to the shower, grabbing a towel on the way.
I opened my iPhone’s music library and scrolled through until I found an upbeat playlist. Turning up the volume, I set it on a ledge next to the shampoo, just out of the water’s reach, and turned on the shower. I aimed the water against the wall, waiting for it to warm up, and sat with my arms crossed and head lowered. Despite the uplifting music and rising steam that offered to lift my spirits, I couldn’t shake the heavy feeling that I had gone to sleep and woken up with.
The last six months have been some of the most difficult I’ve lived since my injury. They’ve been full of firsts in the wheelchair, something that always tends to bring up grief for me. Since May, I moved out on my own, got a puppy, enrolled back in fall semester, and started dating more. Progress in these areas is worth celebration, but each came with major challenges that wouldn’t exist were I not paralyzed. I don’t want to have to worry about finding an accessible apartment building, or train a puppy from a wheelchair, and I don’t want to deal with the insecurities of having a disability in the context of a relationship.
As I sat in the shower with the warm water running over the back of my head and shoulders, my mind was filled with thoughts of wanting an easier life, a “normal” life. When will this stop being so difficult? When will I stop grieving? I shut off the water, and reached outside the shower curtain for my towel. I leaned forward to dry my legs off, and as I did so my feet slipped and I fell forward onto the wet bathroom floor. This is the second time I’ve fallen in a month, and I almost never fall.
I grabbed my towel and pulled it under me before disentangling my legs from the footplate of the shower chair. Finally freed, I sat with my legs in front of me, sopping wet, with Lindsey Stirling’s “Crystallize” blaring from my now out-of-reach phone. I felt my face warm as I became overwhelmed by a combination of self-pity and disgust. There could have been no better image that represented how I felt about life at that moment, than a cold, dripping Carson, sitting naked and paralyzed on the bathroom floor. Filled with rage and pain, I leaned forward onto my elbows and sobbed.
After a few minutes of trying to collect myself, I pushed my wheelchair out of the bathroom ahead of me, scooted across the carpet, and transferred up onto my bed. I dried myself off of the cold beads of water that clung to my goose-bumped skin, and began dressing while a stream of angry tears ran down my face. “This is pathetic," I thought over and over.
The last few months have brought me into such a turbulent emotional space that I’ve questioned whether or not I actually possess the resilience necessary to overcome my challenges. I’ve felt pushed to my absolute limit, and it’s been sobering and terrifying. I’ve found myself earnestly asking, “How can I make it through these challenges? How can I endure this pain?”
Not knowing how, or perhaps not trusting my own strength, I’ve turned to others. My dear older brother received several texts a day for many weeks. Messages like, “Braun, I’m reaching out, I’m struggling”, or “My heart feels so heavy, I don’t know if I can do this”, and sometimes, “I know you’re busy, but can I call you when you have a moment?” From giving me ideas to reduce my anxiety, to offering wise relationship advice, he made himself available to support me. Every time he messaged back, he reassured me that I was never a burden, asked questions to better understand the situation, and expressed love.
The night of the same day that I fell in the shower, I was supposed to meet up with two friends. When I expressed to them that I wasn’t feeling up to making the trip into Salt Lake, they insisted that they come to my apartment, sensing I needed support but not knowing what had transpired that day. I sat cross-legged under my softest blanket on the couch across from them as they listened with concern written on their faces. “You can talk about this as often as you need to”, was their response as I hesitated to share the struggles they’ve heard so many times.
Asking for help isn’t easy for me. It’s especially difficult when I have to ask for support more than once on the same issue, but the other option is that I fight my battles alone. I’ve realized that my response to “How can I make it through these challenges? How can I endure this pain?” is “I can’t on my own.” In my darkest moments, it is always another human being that reminds me that I’m loved, that I can make it through another day, or that I’m doing a good job with what life has given me. It is always another person that gives me hope, or reminds me that I still have what matters most in life. It has been humbling to realize that I’m not as strong as I thought I was, that there are some challenges that I can’t take on alone. But now I know that I don’t have to fight my battles by myself as long as I’m willing to reach out and ask for help.
Brave man. Thank you so much for you sharing your thaughts, your refexions, that now are turning wisdom... Life, suddenly puts upside down... and we have to go on... without knowing how to.
ReplyDeleteThere you are, raising again from your ashes, as A Ave Phoenix...
Me too, feel like you so many times a day... since I lost all my beloved ones so many years ago...
And its trus, we cant struggle everything alone...
Finding a new goal in life can help. As well...
I embrace you with my arms and Soul..and wish for you you can continue to fight your battle with strength and Hope.
I live too far: Argentina...
But for sure if I were near I would offer all my support on your darkest days and brighter as well...
So wonderfull people stand by you... They are your day in the night, your smile in the cry, your FRIENDS....
With all my heart.
Marcelo
Beautifully written, Carson...now I'm crying too. I'm so grateful to know you and appreciate your authenticity.
ReplyDeleteI doubt there is anything i could say that hasn't already been said many times before.
ReplyDeleteWe each i guess have our own struggles, some obviously greater than others.But struggles nonetheless.
And you are fortunate in that you have the kind of support system that so many of us can only ever dream of. You are also blessed in the fact that no matter how bad things get, you know you will never face any of it alone.
Alot has been taken from you, yes, but so much has also been given and learnt.
I can only hope that going forward, you will in your darkest moments try and remember how much progress you have made since the beginning of this particular journey and work up the courage to keep the candle burning.
And far from being pathetic you actually are boyfriend goals and any man would be lucky to have and share their lives with you. Myself included.
And I'm not just saying that to be nice.
Hello it's great what you are doing and it's really inspiration for many people.I try to contact you case I would like to know more about all the activities you do.
ReplyDeleteHello Carson your Facebook page is it active ?
ReplyDeleteEven though I don't have such problems, I feel for you! You are a big inspiration!You may fall sometimes, but as you described there are people that
ReplyDeletethink about you, care about you and I hope you know that you're not alone!Your story really got me into tears and if I'd be there I'd give you a really big hug��You are really aspiring people and I think you should know that.
sincerely philipp��
Today I read your whole story, starting in 2014. When I finished reading, I asked myself "Why are people moaning about so many meaningless things?" I experience that every day in the underground, with my customers... What should I really answer them instead of being polite (to my customers) or just ignore them (people in the underground)? I should show them your story, how a single moment can change a life completely and that most things we moan about, are just so stupid. Moreover they should read your story because you are a guy who openly talks about his feelings, anxieties and so much more.
ReplyDeleteI really hope that your messages (may they be short or long, rarely or not) help others to talk about what happend to them and how life has changed, about the daily sticking points, AND about the joy of life. Especially the last one isn't that easy every day.
This is a great read. Parts of this is like you’ve taken abstract ideas I’ve carried for a while and given them shape and form. I look forward to reading more of your material!
ReplyDeleteHi good morning... my name is Juan my English is not perfect not sure if you're going to understand what I'm saying but it's ok hahaha.
ReplyDeleteI saw your video on how you transfer from ur wheelchair to a car long time ago and I was like this is one more video of ppl trying to get attention ( I'm been honest) but like I was going through my instagram I came across your picture and it was weird cause you got my attention so I decided to go into ur account..
There's no words that I can say to you.. what I can say is the ur a warrior ur a truly inspiring person I thank god the is ppl like you in this world I was reading ur story and I was in tears of joy to hear that even in ur darkest days ur here to show the world that you had much more to put you down. I know is easy to say it but I know you can do it I believe in you is not going to be easy but is not impossible either so keep ur head up and show the world the you can do much more... by the way ur smile is beautiful never stop smiling is the best gift the you got the smile can change the life of someone in a rough day so keep doing what you doing cause ur doing a great job. Love from a stranger that thanks you for what you did today for me thank you thank you for that.. remember ur not alone you have a friend on me... I know sounds crazy �� but it's true.. love love much love to you and god bless you ��
Hi good morning... my name is Juan my English is not perfect not sure if you're going to understand what I'm saying but it's ok hahaha.
ReplyDeleteI saw your video on how you transfer from ur wheelchair to a car long time ago and I was like this is one more video of ppl trying to get attention ( I'm been honest) but like I was going through my instagram I came across your picture and it was weird cause you got my attention so I decided to go into ur account..
There's no words that I can say to you.. what I can say is the ur a warrior ur a truly inspiring person I thank god the is ppl like you in this world I was reading ur story and I was in tears of joy to hear that even in ur darkest days ur here to show the world that you had much more to put you down. I know is easy to say it but I know you can do it I believe in you is not going to be easy but is not impossible either so keep ur head up and show the world the you can do much more... by the way ur smile is beautiful never stop smiling is the best gift the you got the smile can change the life of someone in a rough day so keep doing what you doing cause ur doing a great job. Love from a stranger that thanks you for what you did today for me thank you thank you for that.. remember ur not alone you have a friend on me... I know sounds crazy �� but it's true.. love love much love to you and god bless you ��
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ReplyDeleteThis comment has been removed by the author.
DeleteI read your blog with tears.Thank you for sharing your real life and your feelings here. I am sure your story will aspire more and more people. You are lucky you have great parents and friends. They are always there for you. If I were you, probably I couldn't be as brave as you. So you are already a great guy with strong heart.
ReplyDeleteHi Carson -
ReplyDeleteThank you for your honesty around your story. I recently found out I have some pretty severe life changing back issues that eventually this year will result in surgery. My life has already changed and I find myself relating to the self pity, the hopelessness, the feeling of burden on others. Your story gives me hope. It allows me to think of things a different way and with hope. I truly thank you for that. I am sure it’s not easy to share what you go through daily, but know it’s helping others. It’s helping me. Thank you. I wish you all the love and best in all you do.